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Mirena IUD

Mirena IUD review: Horrible Side Effects 58

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12:11 am EDT
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Hey ladies, You have no idea how relieved I am to hear that I am not alone... I have never really responded to any blogs like this before.. But this one... I must! I am 23 and I had my daughter June 19th 2008. About a month or so later I decided to go ahead and get the Mirena because as so many of you have also said.. The drs. really so talk it up. They told me it was the best thing they had our right now.. Very little side effects, and i would have a very light period of I even had one at all.. Well shoot.. My period only lasted about 3 days before i ever got pregnant.. and it had always been light.. And when I was pregnant I did enjoy not having to worry about. So why not.. Well I gave it a try.. I spotted for about a month or 2 if I remember right.. and then nothing.. I didn't have a period. Besides an occasional light spotting every once in a while. So far so great... So I thought.. I got the abdomal (if that how its spelled...) pain.. Shortly after I had it put in.. and I mean SHORTLY after.. I began to notice an odor down there.. and it was not a good one at all! It was soo embarrassing.. I kept thinking it was all in my head.. I was living with my boyfriend (soon to be husband) at the time.. and I showed him.. I wiped my hand on my creases and he smelled it and said "ya that does kinda stink... You just need to take a shower.. So do I".. So even more so I thought it was in my head.. But as time went by I kept telling him how the smell doesn't go away after I take a shower.. It's as if I haven't even showered... I knew something was wrong.. But didn't once think it may have been the IUD... Me and my boyfriend had some problems through out our relationship.. He slept with other ppl... So that worried me, and I constantly wondered what was wrong and did he accidently get something from someone... I went and got tested multiple times. And let my midwife know that I was worried about the odor.. and that I never had it before.. My boyfriend tells me I never had a smell and he always loved how clean I was.. I did NOT feel clean anymore.. I felt so modest... and insecure.. I didn't know what to do.. I didn't know what to think. It was summer and I didn't go anywhere or really do anything because the smell was sooo strong.. You could smell it through my clothes.. the smell doesn't go away till I wash my clothes.. So my laundry basket stank! I began to think that I may have been experiencing a bacterial infection.. So she gave me some medicine for it cuz she noticed the smell as well... But my test results ended up coming back negative all around.. I went back in a couple weeks later cuz the smell was still there and stronger than ever.. she said "well all of your tests have been negative... Are you sure its not just way my body smells?".. I told her I didn't think so... cuz it never smelled like that before.. and she replied. "well you had a baby. Your body changes after a dramatic experience like that." So again I thought I was trippin.. And Just letting things get to my head.. But deep down I knew something wasn't right..

I also noticed my hair... I have ... well had (cry) extremely thick long curly hair my entire life! I almost didn't know what to do with it all cuz there was SOO MUCH! I have always had some hair come out when I would wash my hair.. That is natural. But as time went by I noticed my little balls of hair were getting bigger and bigger... And as i would wash my hair my hands would be consumed by hair that just.. fell out.. Me and my man both figured it was cuz of stress.. and all I ever heard from people when I would bring it up was "most people lose hair after having children.."... ok... So I just did all I could to stay stress free.. Which was pretty hard being a new parent... And having this odor and hair loss. And all the other side effects.. ( Which I just recently read through and I couldn't believe I had just about every one that I read.. It made me cry) For the time I had it put in, I believe it was late july 2008 till about 6 months ago... Feb 2010.. I have been dealing with the horrible side- effects and not getting any answers for them what so ever! I would go to a friends house and they would smell it.. but not say anything.. Just say "what is that smell!?" I would play dumb... What else was I to do..

Then the abdominal pains began to get extremely painful.. I have always been pretty good with dealing with pain.. And I wasn't going to take myself to the ER for someone to tell me im fine.. when I know Im NOT! It got to the point to where the paing was almost constant.. The times it would finally go away was such a RELIEF! I charished it! But it wouldn't take long before the pain was back .. I could barely bare to walk, sit, stand, anything.. Pushing on pain didn't help at all.. There was no stopping it.. I convinced myself the mirena had to be in wrong or something for these things to be happening! so I finally went in and told my midwife I wanted to take it out! I couldn't take the pain.. I told her that if things didn't change after taking it out I would maybe get it put back in.. or maybe look into the birth control that goes into your arm.. I am not having sex anyway. So I really don't have a need for it. And when I do I will look into getting it again.. (HELL NO!) I WILL NEVER LET THAT THING ANYWHERE NEAR ME AGAIN! I will NEVER reccommend it to anyone! I told my little sister she should get it.. Till I learned all the side effects were because of it.

I have had it out for about 6 months now.. The abdominal pains when away immediaty after it was removed! Had only slight cramping from time to time. But NOTHING like it was.. I was losing so much hair that I started washing my hair only once a week because It was soo depressing to wash my hair and when I take my hands from my head all there is is hair. You can't even see my hands.. I cry just typing about it.. ...And now my hair is less than half as thick as it was before I got on this stupid DEFECTIVE birth control! It has changed me completely! And I hate that I waited so long to find all this out! I was just scared I suppose... My love is the only one I talk to about it.. Besides the hair loss. But with that everyone just says its stress.. I know that is wrong though not only because I now have this proof.. But because My life has been stress free for the past year almost.. Besides the fact I am stressin about my odor and My darn hair falling out! GO FIGURE! .. Now im just wondering how long its going to be before these symptoms go away... Or what I can do to get them treated.. If anyone knows anything please let me know..
Also I am willing to fight this 100% in a law suit! Lets get this thing going! They need to get it off the list of birth control! It's the worst thing that has ever happend to me.. It has ruined my social life.. because I don't want to go around people cuz in a matter of time the smell will be noticeable..

Thanks for listening to me ramble on.. It feels pretty good to actually get it out with people that have experienced some of the same things...

thanks!
In Need of Advice/ Help..
I am 100

58 comments
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massachusetts
Bellingham, US
Sep 10, 2010 8:43 pm EDT

OMG I thought it was just me! I've had my mirena in for 4 1/2 years I got it in 3 months after I had my son, he'll be 5 December 30th and I haven't had my period once! no light bleeding or anything, it seemed great at first, but i started to get a little concerned because, after all your period happens to cleanse you. So I went to get a second and third opinion and both dr.'s told me it was normal. Ok so i was fine, but about 4 months on it I gstarted getting horrible pains that I thought hey twere cramps as if I was getting my period, like I had all the symptoms but no bleeding. Now they're constant and the odor is happening also I went to my gyn she told me I had a bacterial infection and that was normal well I took the medicine and still have it, I went back to the dr and she said said i was fine but the odor is still there and worse than ever! I went back to the dr. recently and now I'm told I have cysts, so all of a sudden I develop these cysts and I can't prove it (yet) but I just know its from the mirena, I also get these horrible migraine headaches everyday so bad I get nauseous. My next visit this thing is coming out! I rather have 10 more kids than go through this, I wish I never got it in. If there's a lawsuit sign me up, if this thing caused all these problems who knows what else it's done to our bodies that we just haven't gotten symptoms for yet.

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Theresadawn
Newbury, GB
Nov 19, 2011 8:35 am EST
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Iv had my mirena for 3 months now, the only side effect I have is the smell... It's very strong (smells like I'm incontinent) and is very strong, I have to wear pads at work so I can control the odour throughout my day making hourly visits to the loo to change and freshen up, they never told me about this side effect when being advised to have the mirena fitted.

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Bingo48
Ogden, US
Nov 29, 2011 4:58 am EST

Wow I thought I was losing it too and was glad to read your comments ladies. I have only had my Mirena for a month and this week I am noticing this horrific odor and I like the the rest of you am extremely self conscious that others are smelling it too. I wear scented pads which I change frequently to control the smell. If those of us that post have this issue it can't be all of our heads. I am seriously considering having this removed as soon as possible. Thanks for sharing your horror story with the rest of us. Really validates my initial concern.

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bray2011
Washington park, US
Dec 13, 2011 5:13 am EST
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Same thing with me, the oder the headaches, bad lower back aches, i was vomiting every morning, the bad cramps, made me sleepy all the time, i could be talking be talking and id fall asleep on u...i don't recommend to No one

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Lovingyou
GB
Feb 29, 2012 6:52 pm EST

Was the odor constant for y'all ?

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Klmco
US
May 07, 2012 12:34 am EDT

I experienced the embarrassing odor as well ...
Turns out it was hair that accumulated around the strings. And not from a brush or bathroom floor sex...
Once I removed the nasty little hair ball, the smell is gone. I do check my strings almost every day now due to the extreme paranoia that this experience rendered.

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Mc_NY
New York, US
May 30, 2012 2:28 am EDT

Hey ladies I have mine placed in april or 2012 and we are in May to almost june and I am having it removed. I cant take the smell. My sex life is gone my going out is gone I have had nothing going on that I was scared that maybe I caught something from my previous relationship but all test show negative. Thank god but this is by no means a great thing to have. I used all these remedies yogurt tea tree oil but nothing helps. I honestly wish that I would have done my research on this before anything. My hair was falling out as well I also thought the same thing stress. I dont understand how DRs can say oh dont worry its nothing its normal no this does a horrible thing to women I dont feel the same Like I shower 6-7 times a day and nothing. I am so embarrassed to even date until I know this smell is gone for good. sign me up for a lawsuit cause this is so not right. My name is MC

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Franlyn
Jamaica, US
Jul 03, 2012 2:25 pm EDT

Had mine removed today after having it in for three months I had a the pregnancy side with no reward of a baby will never recommend to anyone. Weight gain, hair loss. I had more sex when I was pregnant. Wholesale condoms are new best friend.

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Mommie_3lala
Dellwood, US
Jul 08, 2012 10:22 pm EDT
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I have the absolute worst headaches! I get very dizzy at times! I've had mine for a year and some weeks. I don't have sex anymore and I don't know if it's because of the odor because I do have one. My boyfriend has never mention one but I know it's there. I have so much moisture in my underwear that it makes me itch! Sorry for tmi but I thought that possibly I had a brain tumor or something was wrong because my head would and still hurts extremely bad. I am considering getting it removed but don't want to go without having that protection. I'm glad that there are other women that have experienced the odor and has finally gave me a explanation for the migraines/headaches. Called the Dr she said that headaches/migraine was not a possible side effect. I stay talking baths for the odor because I think that other ppl can smell me. I don't even prefer to shower because I think that taking a bath I can soak and air off. Thanks ladies for helping me. I will no longer be a mirena user!

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Mommy120
Jacksonville, US
Jul 19, 2012 9:21 am EDT
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I'm trying to see of anyone is experiencing what I am experiencing .. I got the iud in August 2011 and still have it In now (July 2012) I've had to vaginal bacteria infections where I was put on two antibiotics and the smell went away . I'm experiencing hair loss, and the most embarrassing of all armpit odor. I've never had this problem before and I've tried everything! Nothing works, I also have no desire to have sex, which is not like me. Is anyone else experiencing the bad armpit odor? I don't know what to do! Definitely thinking about getting the iud removed.

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SarahRachel
Portland, US
Oct 02, 2012 12:03 pm EDT
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I got the same iud in, in March 2012. At first it was all great.. And then.. The severe cramping started. I thought it was just normal with having this thing, because my gyn said i would have some mild cramping. Well, i was like okay that's fine. I can deal with that. Well.. It's not mild, it's severe. It's so bad, i double over. Then my period started out really light, but it would last all month long. I would only go about a week maybe 2 weeks without having a period. Then i started getting this horrible smell. It was just light at first but in the past 2 months i have noticed a huge increase in the smell. It's very embarrassing. And now i hear there is a lawsuit and recalls on this thing and a bunch of girls are having the same symptoms and problems? I've got it scheduled for removal October 23, 2012. I will never get it again and i will never recommend it! I hate this thing! Bring on the lawsuit!

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ChelleBell
Cortland, US
Oct 09, 2012 12:37 pm EDT

I’m sooooo grateful that I found this blog! I called this morning after reading some of these posts, and am getting this thing taken out in less than 48 hrs. I have the Mirena IUD, but have only had it for 4 ½ months. I got it put in when my second child was 6 weeks old, thinking it would be a good method until we wanted to have another baby (some day). For the last 3+ months my heart has been racing at night, I’ve had numbness in my hands and feet, anxiety, mood swings, headaches AND ovarian cysts! 2 months after getting it put in, I was in severe pain and got in to see my OB. They did an ultrasound and found that each ovary had a cyst. I have also had a foggy head and just don’t feel normal, that’s the best way to describe it. I pray that once this ‘thing’ is removed that I can get my life back and feel normal again. I have a 20 month old and a 6 month old and it makes me so mad that this ‘thing’ has caused me to lose precious time with my babies and not be the best mom that I can be. I hope that they will take it off the market and give us some sort of reimbursement for all of our pain and suffering. I can’t believe that doctor’s still recommend this thing, with all of these risk factors.

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minuser
Goderich, CA
Oct 23, 2012 3:28 pm EDT

I have had the iud for only 2 months and have experienced the strong odor. Does it go away with time!

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BaddBack
st.charles, US
Nov 06, 2012 4:58 am EST

OMG! am also going to get this out ASAP! This is my 2nd one, didnt have to many problems with the 1st that i got after having my son in 06...had a few pains but thought it was just my body changing after having him. But now with my 2nd one that i got in Aug. 2011... i have had the worst back pain, the bad smell also, discharge & bacterica infections even after taking meds it returns, ive had to wear pantie liners 24/7, my mood as been awful! am always tired even after getting more than 6-8 hrs of sleep, and the pelvic pain as been worst than having my son... now has am typing this my back pain is so bad i can barely stand at work..I thank everyone for sharing their issues...glad am not alone...callin to Dr. today!

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Explicitly
Monroeville, US
Nov 20, 2012 5:55 pm EST
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I have had my mirena since march of 09'. Since then I have experienced every single symptom; no sex drive :/ depression :/ constantly sleepy & by that I mean 11 hrs of sleep and after 8 hours awake I could fall asleep standing. I had no motivation to physically do anything! I was/am drained. That is not the person I am. My attitude and mood can change at a drop of a dime. I feel bad for my family because it was turning me into a monster! Besides that I do experience "that" odor. Same senario when I went to my Gyno. Randomly stomach pain... Few n far between. An experience/ symptom I find is odd and seems commen also, is pregnancy symptoms. I gets belly flutters, sickness, memory loss. I kept this device in for so long because it does the job. But do your doctors tell you what job mirena is actually doing? Mirena is not preventative birth control it terminates pregnancy, after Sperm and egg meet... Some symptoms you have are... Sorry to tell you, due to just that. When I found this out I was literally sick to my stomach. Needless to say... I have an apt bright and early to get this "thing" out :) good luck to everyone experiencing this bull... I hope my post contributes and gives some knowledge & I also hope you do the same and spread the word how horrible mirena is! Xoxo

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kogabland
US
Nov 20, 2012 9:46 pm EST

I've had my mirena in for about four months now with no problems at all.

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Mich89
US
Nov 27, 2012 8:37 pm EST

I've had my Mirena in for 6 months now, and I have no problems or odors, it did hurt and get bad cramp the first two months though. but now it's fine. Everyone's body reacts different though, and the Doc did mention that to me...

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0128
Waukegan, US
Dec 03, 2012 8:43 am EST

I am 27 years old and have had my IUD since March 2009. My first six months of having it I bleed all the tim. After that I was ok for a bit but having sex would hurt. So I went to the doctor and he said I needed to trim down the string, which he did and that help. For the past three almost four years I have had pain in my groin area as well and have had several ultrasounds showing normal. After hearing everyone, I think I want to take it out. I called my doctor about the recall and they stated their are women with lawsuits but there has never been an FDA approved recall, so it is not true. It is just women, like most of us that have experienced problems and are now moving forward with lawsuits.

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Pip271
US
Jan 06, 2013 4:54 pm EST

I had the mirena removed in sept due the offensive smell, been to the docs and they think I'm crazy even offered me anti-depression tablets basically told me it was in my head. Work in an office and some days it's smells the whole place out. Had antibiotics cream and tablets still battling through has anyone managed to get rid of the smell? Any ideas as I am getting desperate? X

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mad gurl mad
akron, US
Feb 14, 2013 2:33 am EST
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I have had my marina for a year now. The smell is absolutely awful. I am so pissed right now after reading all these post. I have spent so much money on hopeful remedies like water works, chlorophyll, probiotics, boric acid insertion capsules, rephresh, poise, various feminine wipes & washes & soaps, multiple antibacterial soaps & so on...I now know 100% sure that it's my Mariana.. I went to the Dr &.while he was down there he had the nerve 2 tell me that he couldn't smell anything! He gave me a rx for bacteria vagonisis. It didn't help. I'm callin his office 1st thing n the morning 2 make an appt 2 have it taken out. I believe that when we try 2 file a lawsuit our dr. Gonna say that its not the Mariana bacause most of us accepted the rx for BV even though we.new we didn't have it. It's their way out.

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Myster
Welland, CA
Feb 21, 2013 2:18 pm EST

So relieved to know im not alone! I too have had a bad odour and headaches almost daily. It is affecting my sex life because i notice it is much worse during sex. The odour is over powering and awful. I have had my marina IUD for about just over 1 yr now. I spot randomly and frequently which is gross and comes unexpected and the smell is even worse when im spotting. Curious if anyone else has experienced more mucous. I have made an appointment to have my removed in 2 weeks enough is enough.

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CCamp
West Palm Beach, US
May 10, 2013 10:48 am EDT

Here Is My Detailed - Nightmare of the Mirena Side-Effects - They Took Out Mirena - Small Piece Was Left Inside [protected]
MAY 9, 2013
Durham Obstetrics & Gynecology – Inserted 5/2007 – Durham, NC
Painful, Severe Cramping and could feel device – Doctors office stated, to give it time
My body needed a chance to get used to it! “Never Happened” – HAD TO GET OUT

Planned Parenthoods – Removed 11/2007 – Spk w/ Stephanie – Ofc. Manager Received Records – Un Educated on Removal of Mirena – Interine Uterine Device – Left Piece of Mirena Inside when removed/ No follow up – Lake Worth Rd. Location/Now Wellington, FL

Royal Palm –/Lake Worth, FL Emergicare Dr. Javed – Complained about bleeding long period of time & Infection and Cramping – 3/2009
Performed 1st Cat/Scan & Ultra Sound LOCATED foreign object (piece of Mirena lodged in uterus)
Re-Verified, by Ultra Sound Testing – Technician also verified foreign object – Small Mirena Piece Lodged in Uterus. Technician showed location of Mirena piece personally viewed on ultra-sound screen with Technician in 2009! Stated needed to see OB/GYN ASAP for removal

APRIL – MAY /2009 – WENT TO OB/GYN – TO GET MIRENA PIECE REMOVED - UNSUCCESFUL
Dr. Roberto Lopez – Gynecologists, Wpb, Fl – Performed Out patient Surgery Lapscopy to remove piece of mirena lodged in uterus! Went back for follow-up visit after out-patient surgery which Dr. Lopez, stated he could not locate the piece was to far in uterus to remove did not want to damage or scrap to get out stated lining was crooked
He fixed performed DNC! 5/2009 – DR. HAD ALL TESTS SHOWING WHERE PIECE WAS LOCATED BEFORE HE PERFORMED SURGERY
6/2009 - Followed up with 2ND opinion – Dr. Council – Boynton Beach, Fl (Female OBGYN), I EXPLAINED to DR. COUNCIL about EXCESSIVE bleeding and Dr. LOPEZ Unsuccessful attempt to remove IUD Piece Lodged inside my uterus, Dr. Stated if not broke less not fix It! Dr. Council prescribed medication to stop bleeding! 6/2009 @ that point I just lived with the nightmare both OB/Gyn Dr’s stated it may just be a fibroid and for me not to worry!

MIRENA Nightmare re-occurred 12/21/12 – Palms West Hospital Emergency Room/Admitted – Vomiting, Bleeding, Cough, Congestion
Emergency Room Dr’s – Gave Nausea Pills, 2 IV’s and 2 Potassium pills for Dehydration & High BP Pill, – stated that I may have caught a bad stomach virus & sent home w/BP still elevated, asked nurse did the ER Dr. understand She was sending me home with an elevated pressure; Nurse came back w/Discharge paperwork and stated Dr, Understood she was releasing me with elevated BP!

RETURNED TO PALMS WEST HOSPITAL THE VERY NEXT DAY: 12/22/12
That evening returned home took another nausea pill, continued to vomiting all night, which was diagnosed the next day by another ER Dr. whom viewed me lethargic w/High BP & vomiting Blood & Abdominal Pain upon arrival back into ER

Admitted 12/22/12 – @ Palms West Hospital, Endoscopy Performed (Dr. Katz) G.I. Specialist–
Several Ulcers Visible – Internal Organs issue’s (Did not notify of Mirena issue until 1-8-2013 @ Follow up visit! Biopsy Taken of ulcers! Dr. Katz stated, Pathologist’s unaware of Ulcers – They’ve never seen type of Ulcers – ordering more Pathology Testing! No Results Given?
Given “Protronix – To prevent Ulcers to take for 6wks.

Returned to Dr. Javed – Doctor whom originally found Mirena Piece – 3/2009 - 1/9/2013
Ultra-Sound Scheduled TO RE-LOCATE piece of mirena, unsuccessful ultra-sound- couldn’t keep water down due to recent Endoscopy surgery – for Unexplainable Ulcers! Dr. stated he would do Cat/Scan half price to help locate Mirena piece! Dr. Javed – Urgent care performed Cat/Scan – Results given 1/9/2013 Re-viewed w/original ultra-sounds from 2009 to Locate Mirena Piece! “BLESS THIS DOCTOR & His Staff He PERFORMED SEVERAL XRAY’S-ULTRA-SOUNDS-MRI’s – Dr. Javed Has Stood By Me the Entire Time trying to help me get this resolved & give the results to OB/GYN’s who had a issue getting out or was not EDUCATED
On Mirena enough to know the Life-Threatening Side Effects it causes “Havoc on
Woman’s Entire Body!

Very Upset – No Where To Turn – Contacted Prior Primary Care Dr. “Sepalika Wasanthanal”–1/11/13 Who gave me a listing of OB/GYN Doctors to contact to see if they could remove piece asap!
*** 2ND ATTEMPT TO TRY AND GET REMOVAL OF MIRENA PIECE
OB/GYN – DR. KARLA ANYSULA – [protected] – Boynton Beach, Fl – visited office on 3 times! Dr. Requested X-ray’s Cat/Scans, Doctor Reports from Dr. Javed to try and figure out where Mirena Piece was located!
Pap Exam @ Office – Abnormal – Infection
AFTER 2WEEKS ANTIBIOTICS for Infection Given “Difuclan” [protected]
Then REFERRED TO SPECIALIST - OB/GYN/ONCOLOGIST
Dr. Recio @ [protected] – Boca Raton, Fl.

Dr. Anysula stated, “DR. REICO HAD MORE OB/GYN EXPERIENCE, SHE COULD NOT CONCLUDE BECAUSE OF THE LOCATION OF
THE PIECE AND WHAT TO DO? AFTER REVIEWING ALL
CAT/SCANS/MRI’S/XRAY’S/DR.& HOSPITAL REPORTS!
DR. ANSYULA STATED, I NEEDED A SPECIALIST NOT A REGULAR
OB/GYNECOLOGIST LIKE HERSELF.

February – 2013
OB/GYN ONCOLOGIST
DR. REICO – PERFORMED PAP AND RECEIVED ALL REPORTS FROM
DR. ANYSULA AND DR. JAVED OF LOCATION OF PIECE
SCHEDULED SURGERY 2WKS LATER TO REMOVE PIECE

PERFORMED SURGERY REMOVE IUD PIECE – SUCESSFULLY @
BOCA REGIONAL HOSPITAL – BOCA RATON, FL.

MARCH/APRIL 2013 – BLEEDING & ADOMINAL PAIN – THOUGHT WAS
FROM MIRENA PIECE REMOVAL SURGERY!

4/24/13 – WENT TO PRIMARY CARE DR. MURRELL – REFERRED TO
GASTROINTEROLOGISTS & ULTRA SOUND ADOMINAL TESTING

4/24/13 – WENT TO DIAGNOSTIC IMAGING FOR ULTRA-SOUND TEST

4/29/13 APPT. @ DR. REICO – OB/GYN ONCOLOGIST
PRACTIONER – PERFORMED VAGINAL ULTRA-SOUND
WHICH SHOWED A SEVERE INFECTION – SO BAD COULD NOT
SEE INSIDE OF UTERUS! PRACTIONER ORDERED PREGNANCY TEST
AND PRESCRIBED “DOCYCLINE” FOR INFECTION – THOUGHT WAS YEAST INFECTION & BLOOD PRESSURE TAKEN 4X BOTH ARMS @ 200

4/29/13 – Pregnancy TESTING DONE @ MED-QUEST @ 441/Southern Blvd. WPB, FL

4/30/13 - WENT TO GASTROINTEROLOGIST – REFERRED BY PRIMARY
CARE DR. MURRELL – TOOK BP WAS 200 AGAIN – STATED WOULD NOT
SEE AND ADVISED ME TO GO TO NEAREST EMERGENCY ROOM WITH BP OVER 200 - 2 DAYS IN A ROW

4/30/13 – WENT TO JFK EMERGENCY ROOM – IMMEDIATLEY PUT ON
HEART MONITOR BP 180/120 – TOOK BLOOD GAVE EMERGENCY BP
MEDICATION TO BRING DOWN ELEVATED BP

4/30 - 5/5/13 – ADMITTED TO HOSPITAL @ JFK MEDICAL CENTER
DOCTORS RUSHED TO TRY AND FIGURE OUT WHAT WAS CAUSING
BP TO ELEVATE AND TO GET UNDER CONTROL

PERFORMED CAT/SCAN – EKG - ULTRASOUND – CHECKING HEART-KIDNEYS ADOMEN – ALSO BLOOD TAKEN 3X A DAY DAILY FOR VARIOUS TESTS
ALSO GIVEN SEVERAL MEDICATIONS TO CONTROL BP

DR’S SEEN WHILE IN HOSPITAL – WHILE FRANTICALLY TRYING TO
FIGURE OUT WHY BP SO ELEVATED – CARDIOLOGIST-IN-HOUSE
PRIMARY CARE – OB/GYN- INTERNAL MEDICINE – 2 INFECTIOUS DISEASE DOCTORS

HOSPITAL DR’S TEAM CONSULTED WITH OB/GYN ONCOLOGIST WHO PERFORMED REMOVAL OF MIRENA PIECE IN FEBRUARY

GIVEN SEVERAL ANTIBIOTICS PER DR. REICO – INFECTIOUS DISEASE DR’S FOUND CAUSE TO BE PID – PELVIC INFLAMMATORY DISEASE – WHICH IS CAUSED BY INTERINE-UTERINE DEVICE – THE INFECTION WAS NOW COMING DOWN SINCE MIRENA PIECE HAD JUST RECENTLY BEEN REMOVED IN FEBRUARY 2013.

INFECTIOUS DISEASE DR’S ORDRED PENICILLAN EVERY 4HRS/3DAYS
WHILE IN HOSPITAL THEN I COULD BE DISCHARGED TO TAKE ORALLY EVERY 6HRS FOR 6-8WKS

5-7-2013 – PRIMARY CARE DR. MURRELL CALLED FOR IMMEDIATE
APPT. UPON RELEASE FROM JFK HOSPITAL – GAVE REFERALS FOR TO SEE ALL DOCTORS IN SPECIFIC ORDER –

OB/GYN ONCOLOGIST – INFECTIOUS DISEASE – GASTROINTEROLOGIST- THEN CARDIOLOGIST

5/8/13 – FOLLOW-UP WITH OB/GYN ONCOLOGIST WHOM STATED I NOW
HAD A NEW OVARIAN CYST HE IS CONCERNED ABOUT DUE TO THE “PID” DISEASE – STATED TO TAKE MEDICATION PRESCRIBED BY INFECTIOUS DISEASE DOCTORS AND FOLLOW UP THEM AND COME BACK TO HIM IN 6WKS. IF OVARIAN CYST IS STILL PRESENT HE WILL PERFORM AGAIN ANOTHER SURGERY THROUGH “NAVEL” TO DRAW BLOOD OUT OF OVARIAN CYST

5/9/13 – DR. APPT. GASTROINTEROLOGIST – PERFORM ANOTHER
2ND ENDOSCOPY AND COLONOSCOPY – SCHEDULING AFTER RECEIVE
RECORDS FROM RECENT HOSPITAL AND RECENT ENDOSCOPY!

CARIOLOGIST AND INFECTIOUS DISEASE DR – PENDING APPTS.

THIS HAS BEEN A “DEVASTING – LIFE-THREATINING NIGHTMARE” SINCE 2007 NO ONE IN THEIR RIGHT MIND SHOULD ALLOW “MIRENA” TO BE ON THE MARKET AND TO BE INSERTED INTO ANY WOMAN- THE FDA AND ALL INVOLVED IN MARKETING THIS PRODUCT SHOULD BE ASHAMED AND HELD ACCOUNTABLE FOR JEPORDIZING HUMAN LIVES!

I HOLD ALL INVOLVED RESPONSIBLE – FDA KNEW THERE
THERE WAS A PROBLEM WITH THIS DEVICE AND THEY CHOOSE TO
BRUSH IT UNDER THE RUG AND CONTINUE TO ALLOW THE MANUFACTURER AND BAYER CORPORATION TO CONTINUE MARKETING THE PRODUCT AS A SAFE BIRTH CONTROL! “WHICH IS FAR FROM THE TRUTH?

I’M A LIVING PRODUCT THAT THE MIRENA IS DANGEROUS TO WOMEN AND LIFE THREATHING, IT HAS ALMOST TAKEN MY LIFE ON SEVERAL DIFFERENT OCCASSIONS – EX: VOMITTING UP MY OWN BLOOD – BP ELEVATED 200 2/DAYS & A INFECTIOUS DISEASE PID(pelvic inflammatory disease) THAT COULD OF SPREAD THROUGHOUT MY BODY EVENTUALLY REACHING MY BRAIN WHICH COULD OF ENDED MY LIFE, WHICH BY THE WAY IS STILL IN ME TO DATE 5/9/13! I’M CURRENTLY TAKING “PENICILLAN” DAILY EVERY 6HRS. & OTHER MED’S THE GASTROENTEROLOGISTS STATED, THE PENICILLAN ALONG W/ ULCERS WILL CAUSE HAVOC ON MY STOMACH, AT THIS POINT I HAVE NO OTHER OPTION TO SAVE MY LIFE, OR REMAIN IN THE HOSPITAL AND GET PUMPED VIA IV EVERY 4HRS. DAILY FOR 8WKS.

I’M APPAULED, UPSET, FRUSTRATED, AND TRYING TO MAINTAIN MY SANITY, I HAVE LOST EVERYTHING DO THIS MIRENA, IT HAS TAKEN EVERY BIT OF LIFE OUT OF ME AND MY FAMILY, & THE SAD PART IS IT’S NOT OVER FOR ME, I STILL HAVE A LONG ROAD TO GO UNTIL THE SEVERE PID I NFECTION IS OUT OF MY BODY AND THE OVARIAN CYST ARE GONE! IN MEANTIME HOSPITAL, BILLS PILING UP & CAN’T WORK AT ALL! MANY MORE SURGERY’S DOCTORS VISITS AND TESTING TO BE DONE!

MIRENA – INTER-UTERINE DEVICE SHOULD BE DISCOUNTED IMMEDIATLEY! MY LIFE AND OTHER WOMEN’S LIVES ARE IN JEOPARDY DUE TO THIS MIRENA NIGHTMARE OF A DEVICE & ALL SHOULD BE HELD ACCOUNTABLE! THIS COULD BE ANY OF YOUR MOTHER’S, DAUGHTER’S, NIECE’S, OR AUNT’S AND WOMAN OF ANY RACE!

SOMETHING NEEDS TO BE DONE & ALL INVOLVED IN MARKETING THIS PRODUCT AS SAFE SHOULD BE HELD ACCOUNTABLE! I AM NOW A LIVING ADVOCATE TO GET MIRENA OFF THE MARKET “I HAVE HAD ENOUGH AND MY LIFE IS VERY VAULABLE TO ME MY FAMILY AND MY CHILDREN NEED ME HERE! I HAVE CRIED AND PRAYED DAILY TO RID
THIS OF MY BODY AND & GOD TO KEEP ME SAFE!

IF YOU WOULD LIKE TO SPEAK WITH ME OR EMAIL ME DIRECTLY PLEASE DO SO @ CANDANCECAMPER@HOTMAIL.COM – AT THIS POINT I HAVE NOTHING TO LOSE; I HAVE ALREADY ALMOST LOST MY LIFE 3X’S & STILL NOT OUT OF THE WOODS! I ALSO HAVE A PERSONAL ATTORNEY ON MY CASE – I ALSO FELT IT’S VERY IMPORTANT THAT EVERYONE WHO MATTERS AND CARES IN ALL HEALTH AGENCIES SHOULD BE AWARE OF THIS AND “HEAR STRAIGHT FROM THE MOUTH OF A WOMAN THAT HAS BEEN GOING THROUGH IT! I KNOW WHAT THIS DEVICE HAS DONE TO ME! I KNOW THOUSANDS OF OTHER WOMEN IN THIS COUNTRY MAY OR MAY BECOME AFFECTED BY THIS LIFE-THREATNING MIRENA INTERINE-UTERINE DEVICE & NEEDS TO STOP!

I WANTED ALL HEALTH AGENCIES TO BE AWARE OF THIS “MIRENA NIGHTMARE I’VE PERSONALLY BEEN GOING THROUGH & I PERSONALLY PLAN ON EMAILING & CALLING ALL HEALTH AGENCIES & ANYONE ELSE I THINK OF TO LET THEM KNOW – WHAT THIS LIFE-THREATNING “MIRENA IS DOING TO WOMEN”!

Signed,
I’m @ my Wits End with this Mirena Nightmare & I want All to Know
What I have and still have to endure! That has Affected and almost
Taken my life and I have No Help Through This Nightmare! This Is Not Fair To Me & All Of Us Suffering From This
Mirena - They Still have on the Market! THANK YOU 4 READING & BE AWARE

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miahorvat587
Houston, US
May 14, 2013 4:13 pm EDT

Hi everyone, I just had my Mirena IUD removed yesterday, May 13th, 2013 after spending 5 horrible months with it. The odor didn't sink in until recently, and it was very stark oder. I experienced all of the horrible side effects I could on this "miracle birth control". It started with minimal hair loss to a hand ful of hair. Continued with spotting, then a week of straight bleeding. No sex drive. Depression sank in like no other. Mood swings are for normal women with REGULAR periods...the Mirena made me literally depressed. I started becoming very angry and at times violent in my actions especially towards my poor boyfriend and even my dog. Talking about it now, I feel very ashamed, but I know that the Mirena IUD was causing me to completely filp a switch! I was not myself, I did not feel like myself, my judgements were very clouded, my action and reactions to everything and everyone were very harsh and temperamentive. I had to seriously apologize to quite a few people once I realized what was happening to me becuase of this horrible drug. I do understand that every drug has a side effect, but to experience a complete life and personality change in less than 5 months is completely ridiculous and very scary. I've experienced full body numbness, black out's, even had to go receive a CT scan, MRI scan, and a great amount of different blood tests. All came out clear and negative. It wasn't until I started experiencing hot flashes like I was in menopause this past Sunday (on Mother's Day on top of that), that I started researching side effects of the Mirena IUD and VOILA! I scheduled my removal appointment on Monday, May 13th, 2013 for 3 PM that day. The minute it was out of my body, no more cramps, no more pain, no more pounding headaches and misery. It is exactly 24 hours from my removal of the Mirena IUD, and I feel like myself! Well Bayer, you did me wrong on this one. Even your fancy Aspirin will get tossed into the trash. Ladies, please, please, please...listen to your body, listen to your gut feelings, and certainly get that "thing" removed if you are starting to feel bipolar...b/c that's exactly what it will do to you, make you feel bipolar and suicidal almost. Much love to all and I hope this will help avoid another woman receiving this "miracle drug" and losing out on x amount of time with her loved ones.

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Juju.em1
Modesto, US
Jun 15, 2013 3:06 am EDT

Ive had my mirena a lil over 2 yrs..ive experienced hair loss, migraines, sharp cramps on and off shifting from one side to the other and vaginal odor occasionally. First year after the mirena was placed, i went in for a routine pap to find out that im diagnose with hpv. WTF! Before the iud my pap results always came back negative. After the iud its positive for hpv. Shortly after i was diagnosed with hpv, i start experiencing fishy odor from my va-j-j. Another WTF! Went to see my dr and was diagnose with bv. The iud has made my life a living hell. I just had my follow up pap a few days ago. Still pending results. If the hpv is still hanging around than the iud is coming out. I cant live my life having problems with my va-j-j left and right. I believe the iud shoud be recalled and us woman should step up and make it happen. Its helping us prevent pregnancy but its hurting our body.

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Still Hopeful
US
Jul 21, 2013 11:39 am EDT

I've had the mirena twice before, both after my pregnancies, with no problems at all. I remember it as great, No period, I stayed horny, no smell. I had another inserted this past week and I stink! I'm just praying that it goes away when my body adjust to it bc I don't want to get it removed, but I'd rather have a hysterectomy than smell like this. Yuck! My sex life has went to h*** and its not helping the mood swings lol

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jones85
US
Aug 12, 2013 6:51 pm EDT

Took my iud out today on my own! I've had it in for years. 25 pounds of weight gain, bloated stomach all the time, mood swings, etc. It did great for the first few years, then the odor began. I was amazed while reading these posts and I was not the only one! Without insurance I postponed having it removed. As a single mother every penny counts, and things kept coming up, so I kept putting it off before reading that I could do it on my own, and so I did. Found a small ball of hair on end of strings. Not sure what this is or how it accumulated, but I'm assuming this is responsible for odor and/or constant infection. So relieved.

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skullsandheartscrafts
Surfside Beach, US
Aug 13, 2013 11:22 pm EDT
Verified customer This complaint was posted by a verified customer. Learn more

I wanted to take a moment and talk about my experience with the Mirena IUD. About two years ago I was put on heart medicine. I couldn't be on the pill I was on with the heart med. So they wanted me to go on the Mirena. I looked online, read reviews, and everything seemed great. My doctor told me about how wonderful it was, etc. Well within three months of having the Mirena IUD inserted, I gained fifty pounds. Now, I was also on the heart med, and betablockers can cause weight gain. So I wasn't sure on what caused it. Later on that third month, I could no longer afford my heart medicine so I had to stop it. A month later, I was still gaining weight. And a year later I was still gaining weight. Now, I eat healthy, I exercise, and I drink nothing but water. Was not losing a pound. Then the severe acne started. I have never had acne in my life. It hurts to even touch my face, it's so horrible. Around the same time, I was having horrible horrible headaches, my vision started getting blurry, I was suffering from horrible lower back pain, and this odd vibrating feeling from the waist down about twice a day . I could not get to sleep till about three AM every night, no matter what time I got up in the morning. I was very fatigue, I didn't want to do anything. And need less to say, no sex drive once so ever. I would rather wash windows. I thought, stupidly, that maybe none of this was related to the Mirena, so I gave it another year. Over this past weekend, I decided I could not do this anymore. I looked online again, and this time, to my surprise, was nothing but horrible reveiws about the IUD, and a ton of women going through what I was going through. I called Monday to make an appointment, and they got m one for Wednesday (today Aug 7th 2013). Now this is odd, because if I ever need an appointment, usually I wait about a month or more. Never, ever, ever two days. So I went to my appointment today, and they took it right out. Not really many questions asked either. Which was odd to me. So I am hoping I will get back to my normal life. For anyone suffering with this, I recommend getting it removed. Now there is something that scares me a little, it's called the "Mirena Crash". Happens after removal. I heard some women say it takes a month to get back to normal, I heard up to a year. So I will update on that. The doctor put me on the "mini pill". I am hoping it will be better, but she did state, that even though it has it's own side effects, it's not as nearly as bad as the Mirena. It is now Monday, I am bleeding to death, with huge clots, and now my hair is falling out. I held my hair in my hands, on the floor, crying to my husband. I looked this up, it is a side effect, usually when the mirena is in, but can happen after the removal for 3 to 4 weeks. My face is clearing up though, and I do feel different. I feel better, more like i'm here instead of being in a fog. I wanted to share my story with everyone. I hope that it helps someone. And maybe help someone decide not to get it. I gave mine almost two years and it just got worse.

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skullsandheartscrafts
Surfside Beach, US
Aug 14, 2013 12:43 pm EDT
Verified customer This complaint was posted by a verified customer. Learn more

What all these "repetitive posts?" Would you like to come to my state and witness all my hair coming out in my hands? Then you can come back on and make more insensitive comments? And then maybe you can add all the other side effects into more insensitive comments. Since you are a male, it's no small wonder why you're a heartless jerk.

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skullsandheartscrafts
Surfside Beach, US
Aug 14, 2013 2:20 pm EDT
Verified customer This complaint was posted by a verified customer. Learn more

Yeah, okay, that's what we all are. And all the women on blogs, you tubes, and for all the others that had to go through surgery to have it removed. And you might be "shocked" or "surprised" to know this, but those side effects are not listed in the booklet or on the side effects booklet. That to me is the ignorant part. Sorry that i'm not all about "conspiracies" and that men have to come on here to give their two cents in something they know nothing about. Take it somewhere else, this is a compliant board for "women" that have been through it, the men belong on the Viagra site.

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skullsandheartscrafts
Surfside Beach, US
Aug 14, 2013 2:25 pm EDT
Verified customer This complaint was posted by a verified customer. Learn more

All of our stories are true, what we have gone through. This is a compliant board, you know, for the "women" that have had the mirena. There's boards for me too you know, head over to Viagra board if one wishes to talk about something that they have a clue on. No one here is being a liar and making it up. You really think that all these side effects are in a "booklet" and they let you know this? Lol, that to me sounds pretty ignorant. That's why we're here, to make women aware of what it can cause. We have better things to do then listen to a man's "conspiracy theory" about who we are.

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skullsandheartscrafts
Surfside Beach, US
Aug 16, 2013 6:55 am EDT
Verified customer This complaint was posted by a verified customer. Learn more

Lawyers are only taking cases to where the women had to have it removed by surgery. I think they deserve that, that's a really horrible thing to have to go through. Thankfully, I did not have to get mine removed like that BUT my effects are just as life changing. They are working on getting a civil suit going for the thousands of women that have had this nightmare of a thing. You're surprised that they're still prescribing this? But you're not surprised that they prescribe that is bad for you every single day in someone's life? That's interesting. The FDA has complaints piling up, But just like with cancer, why fix something if you can make thousands and millions off of someone? I'm not sure where you're thinking doctors are going to be honest lol. That is mind blowing me. Doctors just tell you that something is wondering, it's great, "oh those side effects, totally normal". I would love to meet an honest doctor but I haven't met one yet. I don't care about legal advice or a suit. I have not contacted anyone in this matter besides the FDA. I care about trying to help others. If my story can save one woman from going through this, then it's worth it. Like I said, they're only doing those lawsuits right now. So I have nothing to gain by coming here and telling my story. Some people actually do try to help others and that's their only motive. I know that's hard to believe... but it's the truth.

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skullsandheartscrafts
Surfside Beach, US
Aug 16, 2013 6:59 am EDT
Verified customer This complaint was posted by a verified customer. Learn more

And to just add one more thing, if people can go out and pretend a slip and fall in a store, and sue and win that case, then I believe that anyone that had to have this removed by surgery deserves a suit. I'm not all for lawsuits and believe that most of them are not justified, but if any of you had to have this removed by surgery or it caused cancer for you which has happened to a lot of women, jump on the lawsuit. It's justified. Anything the doctor's give anyone is bad for us, has side effects, and most of the time, we are lied about it. Those medicine's are still on the market, this one is on my list of one's to get off the market. The more we speak up, the more they will have to take it off.

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livinlifeonedayatatime
grand ra, US
Nov 15, 2013 9:34 am EST
Verified customer This complaint was posted by a verified customer. Learn more

I've had the IUD for about year now and the smell has gotten so bad, i cringe with the thought of going in public, especially to work. I dont want to have sex, both because of smell and no sex drive. The smell is so horrific that I just know others can smell it. In fact, I've heard people at work ask what the funky smell was. My finance gets so mad at me because I wont let him touch me. I barely cuddle with him because of this smell. I just read all these complaints and Im calling my doctor right after this. Im getting this thing out!

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deedeejane
Drouin, AU
Mar 20, 2014 10:15 am EDT

Hi All
I am so glad I have come upon this blog. I have had two Marina. The first they took out during an lap to burn some endo off as it was not in the right place. The second one was put in by a doctor and it hurt quite a bit. She told me to check for the string. Two days after the insert I could not feel the string. I went to the docs and they sent me for an ultra sound, then I had to go back to the gynecologist who said she could not reach it to take it out as it had gone up. The ultra sound show the marina it was in there some where. I told the gyno I wanted it out straight away. I have bad mood swings no sex interest, my stomach is bloated and I sometimes notice an odour with constant bacterial infections.This was in August 2013 . it is now 21 march 2014. Because she was going to do a uterus burn when she took out the marina she told me I only had to wait until Oct, then it was Nov then Dec. I feel like I have an alien in my body and i can not get it out. I suffer with pain every day, nausea. My tummy is bloated, with back and leg pain and numbness in one leg.I am going to phone my gyno and try to speak to her to demand that they get it out ASAP. I would like to know more about the lawsuit, not for the money side of it but I feel that when I discussed all the side effect with my doctor she white washed them all and made the Mirena look like the best thing since sliced bread. We are all lucky because we have realised this bloody device has stuffed us up and made our life a misery but there are woman out there who are oblivious to all this.good luck to you all and thanx for sharing x

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Kmhoff
Oconomowoc, US
Mar 29, 2014 9:21 pm EDT
Verified customer This complaint was posted by a verified customer. Learn more

1 year and 3 months ago I had the mirena done because I have cyst. It's been a night mare. No sex drive crabby, bleeding and spotting for two weeks. And now going only two weeks In between cycles! I'm done. I tell my husband my crotch is worth 2 grand and I'm getting no rewards.

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Bluepink$13
San Jose, US
Apr 01, 2014 10:13 pm EDT

Tsk tsk Bayer! I have had the Mirena in for 3 months and I am taking it out! First is the hair loss, and second is the weight gain 10lbs. I'm going natural from here on out!

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Traysal
Trumbull, US
Apr 17, 2014 1:05 pm EDT

I've had the mirena for 6 months and I plan on having it removed. I've had bad headaches to the point where I had to get an MRI of the brain with contrast to determine what was going on. The MRI came back negative...thank goodness. I am also suffering from a foul odor from down below. My Gyno never informed me of the side effects. I am truly upset. I rather suffer from a horrible menstrual cycle with heavy bleeding than killer migraines and smelling rotten!

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ShearNess
darlingtin, US
Jun 14, 2014 11:16 pm EDT

I'm crying reading these post, anger and relief constant cramping and serious bloating, weight gain...All suck but liveable. However constant fatigue and the god awful smell. No STDs or infections. My dr thinks im crazy cus ive had her retest me like 10x lol. I shower 2 to 3 times day use wipes and everything I can to make it go away. Im so embarrassed of the smell I stopped dating. I would rather die then to be intimate with someone like this. The fatigue Is unbearable I'm so tired I can hardly keep up being a single mom anymore. I can't even believe this has been what's been ruining my life all along. I'm getting this removed like yesterday. Thank you ladies so much for being so open and honest u saved my Va Jay Jay . I pray this all goes away when I get it removed.

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ShannonWes
New Orleans, US
Jun 15, 2014 5:13 pm EDT

I had an iud for 10 years with no issues, I just had it replaced and now nothing but issues! Pain in back and abdomen, FOUL smell, pain shooting down my legs, numbness, omg.. I could go on and on, its awful and ruining my sex life! My husband is over me complaining of why I can not have sex again.

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ShannonWes
New Orleans, US
Jun 15, 2014 5:15 pm EDT

I am do over this iud, I want to cry!

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