Boston Children's Hospital
Reviews and Complaints

Dear Boston Children's Hospital,

I hope this email finds you well. I am writing to express my deep concern and frustration regarding the lack of response and assistance I have received from the International Office. I have been attempting to contact them through phone calls and emails, but unfortunately, I have not received any replies or support.

The reason for my urgency in reaching out to your esteemed institution is due to my twin's extremely rare medical condition. Currently, we are residing in London, where there are no researchers or studies available for this unique case. Hence, I am desperately seeking guidance and potential solutions from reputable hospitals such as yours.

I have been informed by the International Office that they require a letter from the embassy to proceed with my case. However, when I reached out to the embassy, they advised me to ensure that the hospital can indeed address my twin's case or provide relevant studies before granting their approval.

Given Boston Children's Hospital's renowned reputation for excellence in research and expertise, I was hoping to inquire whether your institution has any ongoing studies, researchers, or potential solutions related to my twin's rare condition. It would bring us immense relief and confidence to know that we can collaborate with a team that has experience and knowledge in this particular area.

Furthermore, I kindly request that someone fluent in Arabic be assigned to communicate with me directly. This will ensure clear and effective communication, allowing me to provide a comprehensive explanation of my twin's case and address any concerns or questions that may arise.

Please understand that my family and I are deeply worried about the lack of response and assistance we have encountered thus far. We believe that timely and compassionate attention is crucial for the well-being of our twin. We sincerely hope that you can empathize with our situation and provide the necessary help at the earliest convenience.

Thank you for your attention to this matter. I look forward to a prompt and positive response, assuring me that my twin's case will be given the attention and consideration it deserves.

Yours sincerely,

Raweya Alattas

[protected]

Dear Readers, I must confess that I am experiencing a bit of anxiety as, I begin this letter to you. My anxiety stems not from the topic of racism, but rather from the fact that I'm afraid that I will not be able to discuss it adequately in one short letter. Indeed, numerous volumes have been written about the subiect of racism in the past several decades, and yet racism still persists. It has been my experience in working with leadership, directors, doctors and nurse that most do not feel that they are racist. To a certain extent, this is true. Most do not harbor an internal hatred of persons of color, nor do they practice overtly racist acts. Many have friends who are from another racial background and thus they feel that they are not prejudiced. So, if you are BCH Employee, many of you may be thinking something like "Oh, here we go again. I'm tired of hearing about racism. Or best one this make me uncomfortable Besides, I'm not racist. Can't we just skip this letter and move on to something else?" My experiences with employees of color, on the other hand, are another matter altogether. Having been forced to live within a racialized society all of their lives, many are angry and resentful. They see their White peers, many of whom honestly believe that racism is a thing of the past. Mostly all directors try to de-escalate racist by, minimizing, black peoples feelings,.or have Human Resources help as being essentially naive and ignorant. They also complain that they feel that they are always put in the position of having to educate Whites. "Why don't they try to educate themselves?" they complain behind blacks back and always find a way to legal look like they are resolving, this issue. Yet the culture is STILL THE SAME. And they claim that when they try to educate Whites, their BCH peers often fail to hear what they are saying, and tend to trivialize or dismiss their experiences with racism as being

insignificant or even wrong as not representing instances of racism at all. In BCH THEY STILL ARE struggling with the concept of racism. How many black leadership/supervisor/directors?

Why are black employees STILL RECEIVING LESS PAY THAN WHITE AND MORE WORK IS BEING ADDED TO THEM. BLACKS IN LEADERSHIP ROLE PERCENTAGE IS DESPERATELY LOW. Why any black employee that displays great strong character employed for OVER 10 years STILL HAVEN’T RECEIVED PROMOTION. Instead They offer insulting promotional pay and title. LAHEY-BI Hospital is offer Women of color stepping stone. Steward Healthcare is launching a women of color uplifting program. Why isn’t this organization? How many black employees are ops managers/supervisors? How many black employees are executive assistants? How many black environmental services are now leaders or people who has received a REAL PROMOTION? How many black chefs do you have? How many black employees are part of leadership? Why do they still consider blacks doctors here as cleaners? Black nurse as PCA and PCA are treated like Slaves, who can’t say no and never busy to some nurses. Why is the organization afraid of making blacks welcomed?

I am an adult born with physical disabilities that cause my body to still need pediatric sized medical equipment. I have had all my medical specialists at Childrens Hospital Boston since 1968.

In May 08 I went to Childrens Hosp Boston's ER with adominal pain from what ended up being a knotted up lower intestine blockage.

I was in acute distress, projectile vomiting, doubled over in pain, begging this hospital to help me, while Children's diagnosed and then dumped me against me and my families wishes on another hospital across the street from them with no childsized equipment.

The adult hospital and surgeons immediately begged Chidrens to take me back to do my emergency surgery because they had no experience with my disabilities and had none of the right sized equipment or staff trained to impliment pediatric sized medical care but Childrens still refused.

Due to this situation I had my nose broken by adult sized tubes, neck spinal damage from the endo tracheal tubes being too big to fit down my throat, PTSD from having to be intubated awake with no sedated.

Childrens promised communication, and my medical history with the adult hospital but only provided one chest xray, unanswered paging, voice mails, that delayed my failing body from the surgery I needed for many many hours.

Because the adult hospital had no pediatric sized equipment blood test, blood pressure, foley catheters etc basic health care was not possible. I was operated on blind of being able to get the preop blood test every human being needs for safe anaesthestitia, blood typing, clotting, etc. The surgeons had to cut my groin open to get the blood they needed from an artery after life threatening surgery was in progress.

By God's will I survived but now have untreated additional medical problems from the ordeal of being injured in a medical care setting unequiped to handle my complex needs.

Adding insult to injury Childrens Hospital Boston has since rewritten my medical history to make me appear on paper to not have been in any pain or medical distress while in their ER May 08 and changed my disability suddenly from the infant onset they've treated since 1968 into a fictional 'adult onset'.

This sudden document switch is now causing me delays in medicaid covering my already existing essential daily medical care because on paper I don't appear in true need of childhood disability and the complex care needs resulting from it.

I have contacted Childrens to fix their flawed documentation of my records but they are still passing on the buck almost a year later.

If anybody here can help me find advocacy, justice, and ways to get this hospital from abandoning other patients like myself please email me at [protected]@verizon.net

I'm not looking for money. I'm willing to go public to raise awareness on this issue.

I want the world to be aware of the harm that can happen to people with fragile medical conditions who need pediatric sized medical settings no matter what age they live to be.

A person should not have to be harmed or die because their body stayed small while they have lived on beyond the age of 22.